I went to get the root canal and had that taken care of. This is what my lips looks like today. Exfoliative cheilitis is a rare reactive condition presenting as continuous peeling of the lips. I should rub this on my lip four times every day for about four days. He said he knew exactly what it was: inflammation of the lip - cheilitis. Since I'm currently doing a No Lip Balm Experiment and don't use any kind of moisturizer the skin on my lower lip still builds up into big yellow/white crusts which fall of every other week. The skin flakes maybe have become a little thinner nowadays compared to how they were 6 months ago. That's when I decided to go to a dermatologist. The lips got a little better at first but soon turned bad again. Just like the rest of you, I am only human :). The next week, i had pain in my # 14 tooth but ignores it because I had a dentist appointment the following Tuesday. You know, it its very difficult to publish case reports, but this one has brought a lot of interest from people that have the same condition. I gently rub off the loose skin with a cotton swab every morning and evening. Sometimes this cycle differ a little. I have not read this report myself in it's entirety but you'll find what seems to be a summary in a forum post, You can read the Protopic Patient Information Leaflet in it's entirety, You may not use any images on this site for, Lip status and treatment routine as of 2014, Facebook group is up to 68 members (plus some short news). So please take a couple of minutes to fill in your answers. If you have any questions you can post them in the comments field and I will try to answer them as soon as I can. It did not help at all. Published in: British Journal of Dermatology Volume: 151, Pages: 241-242,Year: 2004). He said my lips would turn back to normal in just a couple of days. No more appointments, no evaluation of the treatment, no further tests. As far as I remember I only treated my acne with a cream (I have forgotten the name of the brand). This is one of the drawbacks with a Facebook group: information - good or bad - is eventually lost or pushed out of sight, until it gets repeated a couple of day/months later. He told me to stay off the fruit (especially the citric acid ones) for a while. * I also did several allergic tests at my local hospital: dental materials, food (mostly fruits and greens) and food additives. I've been searching for a blog like this with others who have experienced this issue. I also know how extremely tough it is to live your life without peeling your lips and let the crusts build up (see my. I understand that this is the way things go (I have studied scientific theory and experimental design in university), but it made me angry and upset anyway. In a couple of hours it grew and the lip turned red. Send a friend request with a message to my, Right now there are eight brave members in the group from at least four different countries. I believe that I gave myself exfolivative cheilitis after a couple years of anxiety picking the skin on my lips and never giving it a chance to heal, now my lips peel over and over constantly no matter how long I leave them alone. I apply a thin layer of cream on the affected areas on my lips two times a day (mornings and before going to bed). I can relate to much of what she is saying. You can read the Protopic Patient Information Leaflet in it's entirety here. So far nothing have happened, either good or bad. He gave me a mometasone prescription. As you have seen in the paper, our purpose was to, describe a case of recalcitrant exfoliative cheilitis that responded to treatment with a standardized topical preparation of. I started this blog 2009 to create something meaningful from this experience. He said my lips would turn back to normal in just a couple of days. Factitial cheilitis is a rare diagnosis of exclusion that occurs most frequently in young women with a history of anxiety disorders and recent psychosocial stressors. When I finally managed to gently peel it off the skin underneath was red and raw. Stay strong, lots of energy and love. I have not heard of anyone that was cured completely. The cream feels like vaseline/petroleum jelly on my lips. My lower lip was much worse than my upper one, but both became very dry very quickly. After eating Valtrex (oral herpes medication) for four weeks the blisters are gone and the lower lip is less inflamed. I got my herpes symptoms after the first week I moved in. * I tried hypnotherapy (I was given autosuggestions while in a hypnotic - very relaxed - state), for a short while without results. * Less love. My lips feels kind of normal though, not warm or swollen, I just feel the crusts on top of my lower lip. Visit his blog, give him some love for putting his soul on the line. In the spring of 2009 I only need to moisturize my lips with a lip balm 1-2 times a day. On the forth day I can usually peel everything off without too much force. Finally, I am not offend. But there is room for more - so come on people, join! I got some new mails about a month ago; she could now provide me with the specific formula used in their study. Lower lip peels on a daily basis. Lower lip is still peeling, about every 3th-4th day, but only small, thin segments of skin. Alot of people on the Curezone Forum have tried Protopic with different results: small improvements, worsened condition to no change whatsoever. Exfoliative cheilitis is a rare—yet benign—medical condition that results in thick, dry, and flaky skin on the upper, lower, or both lips. Human touch boost the immune system, maybe that is why my lips were so healthy during 2006-2009? Notice the small area on the left side of the lower lip: it shows some signs of peeled skin and is slightly more red. It is characterized by continuous peeling of the lips and the adjacent skin around it. This means fewer updates (not that I do that very often ;), and it will take longer for me to respond to the mails, comments and Facebook request. The Facebook group is currently up to 173 members - wow! I finished my antibiotics and went for a check up today. But on the whole pretty the EC is pretty stable. Still in denial, and thinking the lip issue would go away on its own, I noticed that my lips started to have discoloration. I blog VERY occasionally nowadays. If you have not joined already, please consider it. My lips have been good the last couple of years. Somehow I got the impression when I met her the first time this summer that she would not "let met go" so to speak, like all the other doctors have done, but I guess I was naive. * The next week I visited doctor #4, He did not know what to do and did not give any treatment at all, but he put me on a waiting list to a skin specialist doctor. After about four weeks he just looked at my then quite crusty lip, shrugged and started to trim them with a small scissor. with a message to my. I have been suffering from exfoliative cheilitis for about three years and it only bothered me in the last six months because before this i just used to pell the dead skin of in the shower. I think I have cheilitis secondary to isotreitoin. She also told me that animal fat is the most beneficial fat to use as it enhances the effect of the calendula (compared to oil/fats from plants). The ointment I use is called Maria Trebens Calendula Ointment and I found it at a local health store. So now I have started to apply a cream with probiotics. Regular peeling, but very thin flakes. I also had a sore mouth on the inside and as a result of that, most of the day a burnt tongue, which made it difficult to eat. As you know I'm very reluctant to the word "cure", especially using it before one has finished a trial/experiment and have been symptom free for a couple of months/years, but I totally support the idea of blogging and especially vlogging. After about four weeks he just looked at my then quite crusty lip, shrugged and started to trim them with a small scissor. On June 1 2009 my lips started to behave unusual again. histamine antagonist). If the skin is loose somewhere it usually peels when I bring the cotton swab to that area or when I rub my lips against each other. I have also used Borage oil for the last three weeks but I have not noticed any significant effects yet. If you want to connect with people with EC, consider joining the Facebook group. So, stress is something that we are all exposed. Thank you for sending me such warm, honest, brave messages, mails and encouragement. Exfoliative cheilitis is characterized as an inflammatory condition of the lips in which the skin of the lips become chronically inflamed, crusty, and sometimes fissured. Chronic Lip Licking is often seen in children and is also referred to as Exfoliative Cheilitis, or Cheilitis Exfoliativa. She tried to treat me for four weeks with different kinds of pills dilluted in water (Natriummur LM I think they were called) without result. Maybe I got the HSV-1 there? I wake up one morning with very dry, red, inflamed lips. * Between the first and third doctor, I had a meeting with the skin doctor. 200mg (one tablet two times a day for two weeks) + no dairy products. He gave me all sorts of antibiotics and mouthwashes but nothing helped. I find it really hard to comprehend that there isn't any one definitive reason we get this, things are fine one day and then you wake up and life is never the same. I have also used Borage oil for the last three weeks but I have not noticed any significant effects yet. Hi! I'm pissed because after having this for 3 years it's now spread to the upper lip. Exfoliative Cheilitis Blog. More? And each time I did it, I would do it 3 or 4 times consecutively (so I guess you could say I did it around 30 times a day). No effect. Causing inflamed lips, exfoliative cheilitis is also characterized by rapid and continuous peeling of the lips. This is one of the most painful experiences in my life so far. Chatting is of course ok! Uncategorized. The condition cause me to change the way I eat, drink, brush my teeth and wash myself among other things. There have not been any significant improvements in the last couple of weeks. He also told me to keep the lips smooth and recommended regular olive oil. She told me to use Hydrocortison steroid cream on my lips. Basically she told me "we can't just do random test in order to find anomalies, and there is not enough people with your condition to initiate any research". He gave me a steroid creme called Kenakort-T. Read more about it in, 1. Since the chinese doctor had trimmed my lips and I had started to use vaseline again my lips actually looked pretty decent. The last one is a lette from an England girl that suffers wih exfoliative cheilitis. She tried to treat me for four weeks with different kinds of pills dilluted in water (Natriummur LM I think they were called) without result. It is also published on. The skin on the lower lip peeled. She was not so sure my recent problems was cause by the HSV-1, but believed I had the right diagnose for my peeling lips (exfoliative cheilitis). * Detox. I was very tired after my Wales experience and don't recall so much from 2004 lips-wise. It is a swedish brand and is called "Munkens Bisalva". I was so relieved I almost hugged her the next time I saw her. • Factitial- if the behaviour triggering the condition is attention-seeking. My personal experience with exfoliative cheilitis. My primary Doctor had no idea what was going on with my lips and highly suggested that I follow my dermatologist orders. * Doctor #8 gave me the steroid creme Emovat 0,05%. He was really dependent on his mother, although he was already 18 years old. After I did that, I would put hydrocortisone on my lips. . Exfoliative cheilitis • Presenting as continuous peeling of the lips. The first day I tried it, I probably rubbed it into my lips 6 or 7 times a day, maybe more. I have recieved the analysis result from the biopsy I did earlier this summer: it did not show anything significant/new except a general inflammation of the skin, i.e. They still got dry and my lower lip peeled, but much slower than in the beginning and less and less frequent, * I told my first doctor about my lip history but she was pretty sure that it was oral (Herpes simplex virus 1/, She gave me Valtrex (500mg twice a day for five days). Dermatologic disorders occasionally present as exfoliative dermatitis. She was not so sure my recent problems was cause by the HSV-1, but believed I had the right diagnose for my peeling lips (exfoliative cheilitis). Until then I will continue using Protopic. We can do this people! My lower lip still turn white when in contact with water. The most common of these are psoriasis, atopic dermatitis, seborrheic dermatitis, contact dermatitis and pityriasis rubra pilaris. Exfoliative Cheilitis is a condition described by the swelling and dryness of lips. I take a cotton swab, dab it in the ointment and put some on my lips, 3. Currently experimenting with paleo-inspired lifestyle (eating-/exercise/sleep habits etc). It would take away the redness of my skin but that only lasted a few days. Here is a summary: * I first called a nurse. I was prescribed antibiotics and took them as prescribed. Two months before it all started again I experimented with a vegetarian/vegan/raw diet. According to Wikipedia Pharmacopoeia is a "book containing directions for the identification of samples and the preparation of compound medicines, and published by the authority of a government or a medical or pharmaceutical society." Chapped, dry, red, swollen as well as cracked lips are also called exfoliative cheilitis, which will be also a major cause of embarrassment as well as discomfort to many people all over the entire world. Here is the list: tablets 200 mg (one tablet three times a day for two weeks) +, 250 mg (2 tablets three times a day for two weeks + Daktarin oral gel +. , and to blog and youtube the results. PS. I started to use a new mouthwash when i moved into my apartment. She told me to use. Contact me on: exfoliativecheilitis [at] gmail [dot] com I have been rubbing a thin layer of cream on the affected areas of my lips twice a day (in morning and before going to bed). It will take time for it to go away but his advise was that I should have come in to see a dermatologist way earlier. He stated that I must also use a sealer to like carmex to protect the outside, but time and the antihistamine will heal the damage done to my inner layers of my lips. The lips are swollen, red, dehydrated and dry, and break off very easily. [I have been tested for thyroid hormones and the result did not show anything unusual]. I stopped immediately but the symptoms remained. According to the patient information leaflet Protopic have some common. Here is the list: metronidazole tablets 200 mg (one tablet three times a day for two weeks) + Daktarin oral gel, Erythromycin 250 mg (2 tablets three times a day for two weeks + Daktarin oral gel + Corsodyl mouth wash, and finally Trimethoprim 200mg (one tablet two times a day for two weeks) + no dairy products. I tried that for a couple of days. Turn the negativity around and make it into a ladder to climb your goals. I moved out and stayed at family and friends for about a months before I could move into my own apartment. I have not read this report myself in it's entirety but you'll find what seems to be a summary in a forum post here. I have only used my. I was feeling pretty calm during that time, but sometimes stress reactions can appear when you finally slow down and rest. I have been using it two times a day for 39 days. I combined that with drinking 2 liters of water a day and brushing my teeth 3 times a day. But then again, almost everything these days is linked to cancer. I may edit this post every now and then. * Next I visited doctor #3 ( a private one) in another city. 250? I contacted a brittish doctor (#6) and saw him about 10-12 times during my stay. Some individuals on the forum have reported that their exfoliative cheilitis first worsened for a couple of weeks before they saw any improvements (if any). FYI I have been using Prevex cream on my lower lip for around 2 years. I got my herpes symptoms after the first week I moved in. He listened to my puls and told me my liver was overheated. I'll stay in touch every now and then! The first layer of skin was pretty much gone and it burned. I layed off the fruit but nothing happened, but the oil keep the lips from drying out. The skin beneath looks pretty normal, but become dry and starts to harden and crust within a few days. * I also visited a dermatologist. There is also a paragraph in the patient information leaflet: "Since commercial availability a very small number of people who have used Protopic ointment have had malignancies (for example, skin or lymphoma). I also took a blood test to see if I had any vitamin deficiency but it did not show anything unusual (I was currently experimenting with a vegetarian/vegan diet). This is the most important purpose of the group. By continuing to use this website, you agree to their use. The ointment used in the report was a "topical Calendula officinalis ointment 10%, a preparation done as per Pharmacopoeia (1064)". I did another dental filling a week before the symptoms appeared. I will not go into details about the discussion I had with the doctor about how to proceed with an evaluation of the treatment, new tests, research etc. Hey thereany cure for exfloiative chilites My email is Samah.firstname.lastname@example.org. The term "cheilocandidiasis" describes exfoliative (flaking) lesions of the lips and the skin around the lips, and is caused by a superficial candidal infection due to chronic lip licking. Not heard of: Exfoliative cheilitis is rather rare, and has other causes, if suspected, better see a dermatologist for proper management, best wishes Send thanks to the doctor A 16-year-old male asked: :) I have limit my time I spend on EC to answering friend requests on facebook in order to add new members to the facebook group. After a week, I noticed that the inside of my lips felt extremely dry and the outside of my lips had a slight tough texture. He gave me a steroid creme called. Second, there might be a link between Protopic and cancer. Soon my lower lip was inflamed, sporting very small, barely visible blisters (I could not see them, but my doctor could). What is exfoliative cheilitis? My lips slowly slowly started to get a little better during this year (less swelling, a little less redness), although the peeling of my lower lip never stopped. Up until June 2009 my lips were almost back to normal. He gave me all sorts of antibiotics and mouthwashes but nothing helped. During this time I also changed my toothpaste every week to see if I was allergic. I have done about four this year and have never experiences any problems though. I can't say I was clinically depressed since I still could function socially in school and at home, but I had a lot of internal pressure for almost two years. The sensation is very similar to olive oil. I'm off the Valtrex pills since the beginning of the year and have not noticed any change from that. According to the patient information leaflet Protopic have some common (> 1%) side effects like skin irritation, rash and herpes viral infections. It usually settles after about 2 weeks. cheilitis. I've been trying the Maria Trebens calendula ointment 9% for about two months now. I should rub this on my lip four times every day for about four days. I also took a blood test to see if I had any vitamin. If anyone reads this review and has info on exfoliative cheilitis and what may have helped them please leave a comment. Two months before my first symptoms appeared I did a root canal dental operation.
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